Picture of Admin User
Discussion on Module 2, "Hospital and Professional Medical Assistance"
by Admin User - Friday, 10 May 2013, 4:22 PM

Dear participants, Welcome to the forum on the second module. This space is meant to give you the possibility to share your opinion with the other participants

(Edited by Federico Pixel - original submission Monday, 4 March 2013, 10:28 AM)

Picture of Sabrina Grigolo
Re: Discussion on Medical Assistance
by Sabrina Grigolo - Thursday, 7 March 2013, 9:47 AM

Dear All,

In the second module, there are several and different chapters, paragraph and activities.

The Italian scientific group has pointed out the close correlation existing among healthcare practice, growing experience and family care of caregiver and of patient himself.

One of the patient has written “ it’s wonderful to know that in our Italian health System there is a way to allow the patient to express his personal experience”.

The mother of a child who suffers a serious disability has said “it is useful and very important for the professional healthcare to have the possibility to read the stories of the family, in particular to know about the different ways to bring up our children”.

To insert the form “With our eyes” in the clinical record can be a very useful tool to allow the healthcare professional to really learn about the experiences of the family care.

What do you think about? What is your opinion?

Kind Regards,

Sabrina Grigolo

Picture of Aldona Droseikiene
Re: Discussion on Medical Assistance
by Aldona Droseikiene - Thursday, 7 March 2013, 11:57 AM

According my opinion, especially  when parents are in an acute situation,there is a lot of quilt over taking care of child suffering from serious disability and there is a need someplace  where they can let off their stress and emotions.  

Picture of Sabrina Grigolo
Re: Discussion on Medical Assistance
by Sabrina Grigolo - Tuesday, 19 March 2013, 11:23 AM

Dear Aldona,

I perfectly agree with you.

In this particular period the administration tend not only to reduce the health services but also places and meeting points of “health promotion “ where families can meet. Families require to be an active part and to fully participate.

The associations have a very important role to defend this places in order to guarantee to the families and patients a good cares level.

What happens in your country?

Picture of Ruta Januleviciene
Re: Discussion on Medical Assistance
by Ruta Januleviciene - Wednesday, 13 March 2013, 3:18 PM

Dear All,

Warm greetings from Lithuania.

I think that families are a critical source of support for children with disabilities. In the discussion above presented by Ms. Sabrina Grigolo has showed very good Italian example of possibilities for parents to express their opinion or to share their problems to the surrounding world. Whereas the readers can read and take advises or to compare their life with others. It gives some kind of relief to all who read those stories.

In addition to this, I think, it would be also good idea to organise once a month meeting which so called ,,Circle of parents and childrens with disabilities''. In this kind of meeting parents with children can meet and know each other not virtually but also physically. They can organise different seminars with representatives from diiferent organisations like hospitals, NGOs, municipalities or alternative treatment or care specialists or just share their personal life to each other or recipes of food, care and etc. This will help them grow personally and spiritually as it will increase their positive future outlook and prevent their stress and deppression.

Maybe in your country this kind of activity (,,Circle of parents and children with disabilities'') exist? Please feel free to share your valuable experience as we need to learn from each other.

With all my best to you,

Ruta Januleviciene 

Picture of Sabrina Grigolo
Re: Discussion on Medical Assistance
by Sabrina Grigolo - Tuesday, 19 March 2013, 11:24 AM

The Circles of parents and children with disability exist in Italy only in the obligatory schools which participate to the National Project “parents’ pedagogy”.

Unfortunately in the health system this happens only through the activities of the volunteers associations. As far as I’m informed, parents are not much involved in the care planning of the healthcare professional.

The aim of our experiment in Italy in to insert in the clinical record a narrative description form of the parents and children. It has the goal to give more information to the healthcare professional about the real resources the family and patient can give.

I think that only working at an European level we will be able to obtain a change. What is your opinion?

Picture of Roma Sirvinskiene
Re: Discussion on Medical Assistance
by Roma Sirvinskiene - Saturday, 23 March 2013, 8:04 PM

By giving families and staff an opportunity to share their experience ,the narrative medicine with pedagogical  impact provides an important  source of qualitative evidance.This will add a meaningful information and context to existing health research evaluation through the all European countries..The narrative medicine and stories contributed to understanding patient and staff experiences.Story telling with parents pedagogy will empower practitioners  and clients to share their knowledges so that services and decisions more accurately reflect their experiences and needs.Additionally,the stories could be used as a catalyst for disccusion at local meetings and national forums with clinical and policy leaders in health education development.This what I think. 

Picture of Juraj Dubrava
Re: Discussion on Medical Assistance
by Juraj Dubrava - Wednesday, 27 March 2013, 4:02 PM

Hello to all, my name is Karola Martakova and I am working as health care staff in senior house.

There are still great hindrances in the patients or people who have special needs in Slovakia. There are unable to express their impairments in partnership  atmosphere and they have perception that the impairments is heavy burden  they have to bear and no one else is interested or pays attention to their difficulties. Autobiographical narrtion could be helpful so that the person  learn how to express their attidute  to the world, to thmeselves and their  surroundings as well as the close people they are living with or working with. The narrative description can be able to think about:Experiences on the relationship  of care. Relationship of care is basis for thedevelopment and partnership.  

Picture of lucia filipkova
Re: Discussion on Medical Assistance
by lucia filipkova - Saturday, 6 April 2013, 8:40 PM

Dear Ruta,

In our country exist the circles of parents with disabilities, they create non-governmental organizations, help their children or relatives to live full life to the extent it is possible. One good example is opening day centre for autistic children. Parents who used to meet together and share their experience decided to create a centre and it is a place where the children can meet and do something as well as their parents.

Picture of Bożena Długa
Re: Discussion on Medical Assistance
by Bożena Długa - Thursday, 16 May 2013, 12:32 AM
Dear friends,

I greet you from Poland, I myself am a nurse in the pediatric ward and worked with children for many years. Nothing helps them to treat the awareness that parents love them and waiting for them to return home. This is the most important.
Children receive support that give them the strength to fight the disease. Where does it support come from?? Very often comes from the stories I tell each other - parents and children. With memories but also with plans for the future. This power comes from the conversation, and therefore patients should be encouraged.

Picture of Rusu Mihaela
Re: Discussion on Medical Assistance
by Rusu Mihaela - Monday, 27 May 2013, 3:54 PM

Dear Ruta,
percent totally agree with you,
  I work in an educational center with both normal children and with deficiete and rates subjectinterested me very much. Working withpreschoolers 2-6 you are put in a position tocommunicate aspects of children's behavior butparents and symptoms of diseases that oftenconstat.De but working with family is difficult,paritele not accept, does not want to see, does not understand that the symptoms of ADHD or child, autism infatil not hear well, it has a phobiaetc.In this case my mission becomes moredifficult, I do not know whether to push parents totake a decision soon, or it let them make their ownprogram to help sooner than children.De parents often delay visiting a doctor, psychologist, speech therapist in the hope that the child will return later, but in most cases just the most important time and some disorders should be treated as soon as possible. I think in my country this kind of activity (,, Circle of Parents and Children with Disabilities'')does not exist. These topics (ie what we call the parents that their child has a mild illness / serious /life, etc., as they say children who have diseasethat should be treated as not like other children) would be very helpful especially parity.

Mihaela - Romania


Picture of Manuela Amarii
Re: Discussion on Medical Assistance
by Manuela Amarii - Sunday, 24 March 2013, 11:16 AM

Dear Sabrina,

It will be great if these strategies will be included as an important part of our health policies, as a model of succes in prevent, treat and integration .

Picture of ingrid karko
Re: Discussion on Medical Assistance
by ingrid karko - Saturday, 6 April 2013, 8:43 PM

Dear Manuela,

It is great idea to put these things into health system. So far there are mostly only initiatives of parents or relatives to ease patients or elderly or handicapped people or to let them know and also their families that they are valuable people!

Picture of Nicoleta Nita
Re: Discussion on Medical Assistance
by Nicoleta Nita - Friday, 29 March 2013, 1:06 PM

Greetings!The courses are indeed very useful  for everyone,but I think that they should be shared more.In some families,people with disabilities are often seen as a reason of embarrassment ,and therefore are considered a non-discussable topic.In my opinion families that have to take care of a person with one or more disabilities should have access to these informations,so that they stop seeing the patient as a problem,and start seeing him as a person.I have to mention that this point of view in a family is not a general rule.



Picture of Anna Byczyńska
Re: Discussion on Medical Assistance
by Anna Byczyńska - Wednesday, 15 May 2013, 11:50 PM

Dear Sabrina,

I support your opinion. I have always in my work as a nurse thought that a lot more help to the patient if I listen to him and establish a dialogue. It's always a better understanding of his problems and accurately respond to his needs.



Picture of sonia rita piana
Re: Discussion on Medical Assistance
by sonia rita piana - Sunday, 19 May 2013, 6:14 PM

I think it's a new kind of approach very important for everyone, both the"experts" and the patients. Few years ago (in about 2000) I went to Netherlands for working in a centre for disabled people, "The Amerpoort", and over there this approach was already used, also if it has not this name. I wonder if it's the same also now, what's changed...Is there anybody from Netherlands, who can answer?Thanks

Picture of Teres Krzazek
Re: Discussion on Medical Assistance
by Teres Krzazek - Saturday, 1 June 2013, 8:34 PM

Dear Sabrina,
I agree with you! I believe that we do not give enough opportunity for the patient to talk with doctors and nurses. Only dry "how are you" and "that hurts"? And there is so much you can learn from the patient and thus help him.
Therefore, I think that this module is very valuable - I know that we all have a little time, but sometimes it is worth your while to achieve much better results in the treatment.

Picture of Aga Buczyk
Re: Discussion on Medical Assistance
by Aga Buczyk - Saturday, 1 June 2013, 9:12 PM
Valuable module. I learn new things about narrative medicine, which I hope to use in their work. Thank you.
Picture of grazia anna calderisi
Re: Discussion on Medical Assistance
by grazia anna calderisi - Friday, 21 June 2013, 1:11 PM

I as a phisioterapist I found interesting this course (module 2) the importance given to listening to the family and health care providers. The aim of better considering the narration as a strategy create a path of the optimal care. I therefore believe essential in order to place the patient at the center of the work.

Picture of Francesco Campo
Re: Discussion on Medical Assistance
by Francesco Campo - Saturday, 22 June 2013, 10:56 AM

Not only cures. . medical practices as such ..... but also the heart, the heart that will take you to the amino patients, but also the soul of the family
It is appropriate that this' is noted in the medical record

Picture of Serafina Lo Piccolo
Re: Discussion on Medical Assistance
by Serafina Lo Piccolo - Saturday, 22 June 2013, 11:00 AM

the words of Francesco Campo  are important

Picture of Rosaria Rita  Patti
Re: Discussion on Medical Assistance
by Rosaria Rita Patti - Saturday, 22 June 2013, 11:04 AM

I also agree with what was said by Serafina Lo Piccolo

Picture of Michele Migliaccio
Re: Discussion on Medical Assistance
by Michele Migliaccio - Saturday, 22 June 2013, 11:19 AM

 also i share  with how they have written Serafina Lo Piccolo, Rosaria  Patti and  Francesco Campo

Picture of Juraj Dubrava
Re: Discussion on Medical Assistance
by Juraj Dubrava - Monday, 18 March 2013, 3:51 PM

International organisations  to promote global health and working in the countries with low income are practically not only helping the poor countries but they also helping themselves  to prevent transferable infections to come to their oen countries

Picture of Sabrina Grigolo
Re: Discussion on Medical Assistance
by Sabrina Grigolo - Tuesday, 19 March 2013, 11:22 AM

It is important to give contribution in order to transform health into a common good for everybody overcoming cultural, national and economic barriers.

The health promotion doesn't have to take care only of the disease prevention but also of the improvement of global life style and has to consider the stories of the patients, the families and the environment where they live.

What do you think about?

Picture of Ioana Macarie
Re: Discussion on Medical Assistance
by Ioana Macarie - Thursday, 21 March 2013, 1:08 PM

As the world and its economies become increasingly globalized, including extensive international travel and commerce, it is necessary to think about health in a global context.

In my opinion people, since they are young, acquire habits and behaviors that gradually integrate what is calledlifestyle. It is very important in all life stages, adopting the habits that build healthy lifestyles, of which they are part: proper nutrition, rest, 60 minutes of physical activity for children and adults 30 minutes, recreation, personal responsibility, a positive mental attitude, hygiene and prevention, and care of the environment. The testimony of healthy living and adult training are the tools that allow you to choose favorable health practices.

This habits you can find out by listening to the person story, to the family that has a very important role in this process and to see the environment in which that person lives.

Picture of Hijkoop Erica
Re: Discussion on Medical Assistance
by Hijkoop Erica - Friday, 22 March 2013, 3:34 PM

It would be interesting to find out what strategies are applied in Romania to include families in participation in the healthcare practice. Are there any strategies at all in the public health sistem, or at NGO-level?


Picture of Ana-Maria Oarza
Re: Discussion on Medical Assistance
by Ana-Maria Oarza - Friday, 22 March 2013, 6:36 PM

hi all! i am from romania and i work in the field of medical rehabilitation. Family plays an important role in human life sick, especially when it comes to some serious conditions. We as nurses encourage families to be as close to the patient and be understanding with them, that when a man is suffering from a condition becomes very irritable and sensitive and needs understanding and encouragement to overcome that time.
I as assistant medical recovery, promote health, encouraging patients to adopt a more correct position of the body, stay away from certain external agents such as cold, moisture, harmful agents in the body.

Picture of Laimutis Vasilevicius
Re: Discussion on Medical Assistance
by Laimutis Vasilevicius - Saturday, 23 March 2013, 1:41 PM

Last week we had a discussion with parents where child has a disability and nurses presented family education process moduls,which are proposed that the effects of socioeconomic stress on child outcomes are mediated through parenting stress and  family interaction patterns,as parental depressed mood,lower levels of warmth;nurturance and monitoring of children.This touches an education in global health understanding in simple daily life.That is, family structural veriables such as parental education and income affect the level of actual interactions within the family and child,s behaviour.According my practise ,children with disability,exposed to more rejecting and aggressive parenting contexts,as well as interparental conflict,display greater aggression and the effects between negative parenting attitude to the suffering child aggression are bi-directional.Our team highlighted  that children with disability at first do not understand the reality and see the problem in their parents.  

Picture of Roma Sirvinskiene
Re: Discussion on Medical Assistance
by Roma Sirvinskiene - Saturday, 23 March 2013, 2:19 PM

Following the laimutis expressed opinion about the family process behaviour module,I fully agree that parent education and family interaction patterns during childhood also might be linked more directly to the child,s developing academic success and achievment -oriented narrative medicine attitudes.Generally speaking, I think that narrative is an effective method to improve the quality of health service delivery.(especially in home care)Using narrative in health care settings creates an opportunity for the voices of patients and health care providers to be heard.Additionally,it adds to the context to the objective data  that is stored in  reports, academic papers and evaluations.Providing this context helps to facilitate dialogue between patients clients and decision makers.It is a powerfull level for change and improvement of health system education.

Picture of Lina Turleckiene
Re: Discussion on Medical Assistance
by Lina Turleckiene - Saturday, 23 March 2013, 3:26 PM

Hello.My name is Lina.I am working in the Santa hospital in Vilnius .I can see how  health organisations, moving along their improvement,can change their growing need to leverage the knowledge and experience of education in the whole health care system.The breadth and depth of this knowledge,if shared,can create transformative   home care.Sharing personal stories within the health system helps to break down the misconceptions ,perceptions, and confusion that can inpede the interpretation of this knowledge.

Picture of Jelena Droseuikiene
Re: Discussion on Medical Assistance
by Jelena Droseuikiene - Saturday, 23 March 2013, 7:00 PM

Following the discussion aroused by Sabrina,I would like to comment about Lithuanian experience.Lithuanian nurses  with psychologists has drawn on the experience,knowledge and advice of thousands of people with mental disabilities across the country,in the course of drafting the strategy of transforming health into a common good for overcoming cultural,national and economic barriers.The discussion was about improving mental health system that can truly meet the needs of people of all ages,cultures and nations living with mental health problems and illness,and their families.This is not a simple task.There are no miracle solutions and there is no single template that will work for everyone or for every jurisdiction.The forum therefore tackles a broad range of issues and presents many reccomendations into practise now becomes the responsibility of governments,of providers,of mental health and related services, and of the countless people in every corner of our land who use these services every year.Our team will continue to do its part,but transforming the mental health system in Lithuania is truly a job for us all,especially to change the mentality of the people to the mental problems and ,of course, it is connected to economic barriers.We believe that now there is a time when exists a historic opportunity to make a difference.It will not be easy ,but the winds of change have been swirling about the mental health system for many years.  

Picture of Merly Mendoza Pérez
Re: Discussion on Medical Assistance
by Merly Mendoza Pérez - Sunday, 24 March 2013, 10:43 AM

Greetings to all!

I totally agree with your opinions and experiences.

In Spain concerning public health follow-up and treatment of patients with disabilities is quite affected and almost ignored due to the cuts in the country today. If it is difficult for a person to have a family member with a disability is made much more difficult encounter in society without any support or guidance.
I think it's so important to fight these diseases with drugs to patients, but also with guidance and lectures for parents, who in one way or another can feel supported in society and not excluded.
A great tool or serious alternative narrative medicine, as it is based on understanding people, uniting and valuing the participation of patients, families and professionals.
From my experience of working in a private organization for the disabled in Spain, it is noted the social difference. Because it shows the quality and improvement of the patients having private related public entities. This is the origin of the great problem. Even when social divisions?.

What differences are there in your countries of medical institutions in general, the public and private do people have the same benefits for patients?

Picture of Laimutis Vasilevicius
Re: Discussion on Medical Assistance
by Laimutis Vasilevicius - Sunday, 24 March 2013, 12:41 PM

These days a fierce debate it is going round about private and public health sector.New Minister finds many shortcomings in health financing system.There is a significant variation in the prominense in the private sector of the delivery of health care.Will  soon be introduced in order using the Health insurance funds for carrying out the services to the people and private institutions and public institutions.By the way, we talk about primary health care,dentistry is basically private offices ,a considerable network of family doctor,s offices,employing one or two physicians, or their they themselves established.However, an expensive clinical trials,which puts pressure on,basically it,s three a stronger companies that is now here and engaged in public relations.and draw under omnipoted end,but our government will probably enter an order that all funds will be accounted for, that the tests will not be dublicated,that will not be pressure to do unecassary testsand to regulate the quantity. Currently, we can say that private treatment is more expensive,but if to speak about quality ,there is not much different.Just more quicker and more polite service.

Picture of ioana codreanu
Re: Discussion on Medical Assistance
by ioana codreanu - Sunday, 24 March 2013, 4:22 PM

Hellou, I like very much the topic of the course, because it is necessary to develop the therapeutic relationship and the rool of parents in the health system. not only in the educations. In our medical system the therapeutic relationship and the family, or narativ medicin it is but not like the first things in medical act. I  From this cours i love it, the descriptons narative and interview WHODAS. T think in the privet practice it is acording o goog time for this.

Picture of Gertruda Ivanovaite
Re: Discussion on Medical Assistance
by Gertruda Ivanovaite - Sunday, 24 March 2013, 9:19 PM

The module theme and tools are very close for me as I was introduced in Danish and Lithuanian programme ""Vaiko labui""The idea is very similar to what we are speaking now in our discussion.We focused on the points how to use parental pedagogy and health service together.We had introduced also children group and had discussed ways of preventive activities which have an substantial impact of a social skill of a young child.Besides we touched the impact of the succesful ways of implementation of the family relations I think that we must to mention the understanding of needs and preferences of the parents and teachers and their knowledge exchange activities,what is very important for the quality of good relations as well in health education in our future community.

Picture of zuzana noskovicova
Re: Discussion on Medical Assistance
by zuzana noskovicova - Sunday, 31 March 2013, 12:58 PM

The Educational and therapeutic  Pact was discussed during our workshop in Slovakia while it requires the sharing of knowledge and expertise in care paths, aimed at a common goal to protect the quality of life and the promotion of health. It is based on the enhancement of skills, and of the parents and/or family’s experiences. Up to now the knowledge of families that can emerge and be enhanced thanks to the tools of the Methodology has not been taken into consideration. It was instructive that the The Educational - therapeutic Pact is individual and customized by each person involved on the basis of his/her story, culture, personality, and the source of these knowledge and skills are his/her parents and family members.

Picture of Ionela Ciobanu
Re: Discussion on Medical Assistance
by Ionela Ciobanu - Wednesday, 27 March 2013, 6:10 PM

hii! In my opinion the family plays an important role in human life sick, because the family must understand and encourage the sick person, and the asistant ofer recovery.


Picture of Anisoara  Hasmatuchi
Re: Discussion on Medical Assistance
by Anisoara Hasmatuchi - Thursday, 28 March 2013, 6:54 PM

I also agree that family is very important in helping a sick person,we should encourage them,but I think that the medical sistem here in Romania needs some real changes not only in the financial sector but also in approaching those who are having health problems.

Picture of Małgorzata Wilczyńska
Re: Discussion on Medical Assistance
by Małgorzata Wilczyńska - Thursday, 16 May 2013, 12:10 AM

I agree that the family plays a very important role in the therapeutic process. No one will give the patient the support and understanding of the family. And these are the necessary factors for a faster recovery.
Encouragement and motivation that loving people give a sick person can, in many cases, work miracles.

best regards,

Picture of Anisoara  Hasmatuchi
Re: Discussion on Medical Assistance
by Anisoara Hasmatuchi - Friday, 29 March 2013, 5:33 PM

Hello! In my opinion childreen with dizabilities need a lot of suport from their families but it is more important that all people to change the mentality in approuching this mater. If all of us understant that we have to help them to integrate and not to feel less important and we must teach our childreen how to behave at school. 

Picture of Florentina Gherman
Re: Discussion on Medical Assistance
by Florentina Gherman - Saturday, 25 May 2013, 7:52 PM

in the care centre where I work, we put a lot of accent at the encouragement of the family. and also we stimulate the family to visit their sick relatives as much as possible. 

Picture of Ala Woznicaa
Re: Discussion on Medical Assistance
by Ala Woznicaa - Saturday, 1 June 2013, 8:12 PM
I agree with the opinion that the family should be encouraged to visit the patient. This is the first step to get together to create together a team that will help him defeat the disease and return to health.
Picture of Rotaru Cristina
Re: Discussion on Medical Assistance by Rotaru Cristina 24 March 2013 6:14PM
by Rotaru Cristina - Sunday, 24 March 2013, 5:08 PM

This module is very good.

Picture of Tomas Matekonis
Re: Discussion on Medical Assistance by Rotaru Cristina 24 March 2013 6:14PM
by Tomas Matekonis - Monday, 25 March 2013, 4:50 PM

Do you have any experience in digital stories using in health system?We must also to recognise the role of the digital stories,which are told by real people about their real experiences. The process draws on well established traditions of education,oral history ,visual arts,community photography and grassroots social action.Some patient stories are short,some of them are long,but the first person video-narrative,created by combining recorded voice,still and mooving images and music or other sounds.

The narrative medicine and telling stories aspects allows  users to take advantage of emerging technologies and a greater array of disemination options.What do you think is it good approach in narrative medicine experience?

Picture of Antohi Andreea
Re: Discussion on Medical Assistance by Rotaru Cristina 24 March 2013 6:14PM
by Antohi Andreea - Wednesday, 27 March 2013, 5:57 PM

I reed this cour, but I think, we can't developmant some of them, because it is not so much time for individual therapeutic patient. It is interesting to devopmant somathing like this, but can you explaine, What can we faith whith the sistem, becaus de sistem is not so isy to understanding. I want tu belev, like this information is usal to practisis in Romania

Picture of Cristian Chiperi
Re: Discussion on Medical Assistance
by Cristian Chiperi - Friday, 29 March 2013, 6:47 AM

I am very excited about these courses. It's good that different medical professionals. Reported experiences we learn from others and apply further, not only to patients who have contact but also ordinary people, ordinary citizens.

Picture of Carneci Andarache Odetta Marilena
Re: Discussion on Medical Assistance
by Carneci Andarache Odetta Marilena - Friday, 29 March 2013, 10:48 AM

Yes, I believe that this course "narrative medicine" is extremely useful. It is common for the medical system to treat the patient as a patient and not "man." Man is the primary communication tool. Through communication (whether verbal, para, gestural, etc.) find much more than we can imagine. Narrative, I would say it's a bridge to health. As a psychologist I admire and encourage this great initiative. I work at a retirement home and communication is the most effective course associated with individualized treatment.

Picture of Alina Kaśka
Re: Discussion on Medical Assistance
by Alina Kaśka - Saturday, 18 May 2013, 1:53 PM
I also believe that narrative medicine can be very useful. Most importantly - it's a not cost us anything and can dramatically increase the quality of life of the patient and his or her chances of recovery!
Picture of Gavrilescu Silviu
Re: Discussion on Medical Assistance
by Gavrilescu Silviu - Friday, 29 March 2013, 12:10 PM

I think that this course is interesting and i hope that I will use it's knowledge in practice.

Picture of Bucur Lenke
Re: Discussion on Medical Assistance
by Bucur Lenke - Friday, 29 March 2013, 1:41 PM

A person with a disability is often defined for what he/she is not or has not. Starting only from their deficiencies causes a rejection.

Parents know their child very well, and the intervention of the family members are the basis of the care. They contribute to the physical and moral development of their children in an effective way, sharing every moment of their life.

So, to insert the form "With our eyes", in the clinical record, can be a very usefull tool, which allows the healthcare professional to realy learn about the experiences of the family care.

Picture of fanica barsan
Re: Discussion on Medical Assistance
by fanica barsan - Friday, 29 March 2013, 1:39 PM


Picture of Antohi Andreea
Re: Discussion on Medical Assistance
by Antohi Andreea - Friday, 29 March 2013, 5:40 PM

i m asisent medical and i work every day to promoved the health and i talk with pacient and i truy to give them truest  but i thing the family  play in important rol to ther reabilition


Picture of Adrian Gavrilescu
Re: Discussion on Medical Assistance
by Adrian Gavrilescu - Friday, 29 March 2013, 5:26 PM

easy, usefull and interesting

Picture of Adrian Gavrilescu
Re: Discussion on Medical Assistance
by Adrian Gavrilescu - Friday, 29 March 2013, 5:26 PM

easy, usefull and interesting

Picture of andra cantemir
Re: Discussion on Medical Assistance
by andra cantemir - Saturday, 30 March 2013, 9:42 AM

I think this module is verry usefull and important .

All the patients need us, (all of us: doctor, nurse, infirmier, psychologist have a important rol in patient life) They need to know we are interesed by them, we respect them, understand, listen and help them. To course we talked about the time to each patient - i think is verry important to respect that time, and not treat patient fast ( only because you have a lot of consultation and another program to private cabinet -  to our disappointment that there are such cases ) - in this case maybe we must put ourself in patientplace and see how is when u are treat shallow.

For my opinion it must pass a lot of years to "treat" our ill system, it's a pleasure to view someone who does his work with the soul, and treat persons how they worth it, We need that patient have trust in medical personal 'cause currently i don't think many have confidence.

we must learn from this module, is verry usefull, and maybe change something, because there are o lot of people, childrens ill, and they need afection, trust, understanding, profesional work, respect and a lot of thinks...

Picture of Vasilica Rata
Re: Discussion on Medical Assistance
by Vasilica Rata - Saturday, 30 March 2013, 6:11 PM

Very usefull to learn more about narrative medicine, so we can apply new methods in our care center in Iasi


Picture of Daniel Puscasu
Re: Discussion on Medical Assistance
by Daniel Puscasu - Saturday, 30 March 2013, 6:15 PM

I appreciate the posibility to participate to these courses. Although often there is no time to spend more time with patients, it is obvious that it makes a big difference if you spend just a few minutes lo listen to someone's story and understand him better. 


Picture of Anca Caraus
Re: Discussion on Medical Assistance
by Anca Caraus - Saturday, 30 March 2013, 9:56 PM

I am very excited about this course.

Picture of teofil brustureanu
Re: Discussion on Medical Assistance
by teofil brustureanu - Sunday, 31 March 2013, 11:30 AM

The course is very interesting, I am a nurse at a retirement home and narrative medicine system is useful for a better conversation with them.

Picture of lucia svobodova
Re: Discussion on Medical Assistance
by lucia svobodova - Sunday, 31 March 2013, 12:07 PM
  1. For us in Slovakia especially in public health sector it is really new approach for us as staff and for pacient and relatives, communication is a biggest problem in our work . 
Picture of Sabrina Grigolo
Re: Discussion on Medical Assistance
by Sabrina Grigolo - Tuesday, 2 April 2013, 11:02 AM

Written by Angela


I have attended the face to face training and online course.

I like more the residential course than the online version because in this way I can directly  follow the concepts explain by the experts.

I find a lot of informatics problems in the e-leaning platform.

Thanks Sabrina for your help.

Picture of Sabrina Grigolo
Re: Discussion on Medical Assistance
by Sabrina Grigolo - Tuesday, 2 April 2013, 11:02 AM

Writen by Graziella


Hi, I’m Graziella and I work in Hospital as a nurse.

I would like to describe my experience of care in order to improve the taking care of the patients and her/his family.

The narrative description of the patients allows to better understand how the patient and his/her family feel.

I often use in my work “with my eyes” form or educational and therapeutic pact for many reasons. These are especially given to the patients’ relatives and not directly to the patients.

And how about your experience?



Picture of Sabrina Grigolo
Re: Discussion on Medical Assistance
by Sabrina Grigolo - Tuesday, 2 April 2013, 11:03 AM

written by Maria Giovanna

I have been working for five years as supervisor of three groups of educators who are working in contact with disable people.

I have published an article which could be an example of narrative and healthcare promotion.

This article was published in July 2012 in “Prospettive Sociali e Sanitarie”.

Picture of Sabrina Grigolo
Re: Discussion on Medical Assistance
by Sabrina Grigolo - Tuesday, 2 April 2013, 11:04 AM

written by a colleague

I tell a story.

Some years ago a young woman come to my practice office to start a psychotherapy path.

She wanted to improve her self-esteem level .

The woman was wearing shabby clothes and in the first three / four sessions she cried in several occasions.

She didn’t like herself.  Through the narrative description of her personal story she became aware of the reason way she didn’t love herself.

She started to appreciate some parts of herself and in the same time to dress in a more accurate way, to improve her relationship with men which had been damaged by an abuse experience she had when she was a teenager and that she had never told to anyone.

I have told this clinic experience because it has allowed me to see and “touch with my hands”  how, as the narrative description was going on, the person was becoming more and more aware about herself, her emotions, her fears and the reasons causing all this.

The narrative description about herself has allowed her to discover her personality, love herself and to start the way to change.



Picture of Aldona Droseikiene
Re: Discussion on Medical Assistance
by Aldona Droseikiene - Thursday, 4 April 2013, 10:47 AM

I am confronting on a  daily basis with people who have multiple sclerosis and I have experience how people feel when they find out about their diagnosis.Especially young people who have small children and are climbing on the steps of the career.They are depressed and almost crushed.I have to use all my creativity and pedagogical-psychological potencial that the patient would dispose and to learn how to live with the disease.I often say that I am on the role of the  priest,because I need to listen of the whole life story ,because often people are searching the reasons of what had happenned with them.Therefore I carefully read all the comments and  I am happy with an opportunity to exchange of the information and experience ,which you use in your practise.     

Picture of Ela Duska
Re: Discussion on Module 2, "Hospital and Professional Medical Assistance"
by Ela Duska - Wednesday, 15 May 2013, 10:49 PM

Very useful module. Especially valuable to me was the chapter "Organizational tools" - because I work in a hospital could use the information contained therein. "root clinical maps" - surely the implementation of it on my work.

Picture of Joasia Kacprzak
Re: Discussion on Module 2, "Hospital and Professional Medical Assistance"
by Joasia Kacprzak - Wednesday, 15 May 2013, 11:04 PM

Very useful information on clinical audit. Not yet fully understand all the issues related to narrative medicine, but I am very interested in the subject. However, definitely will use the knowledge gained in this section on Organizational tools, these are issues particularly interesting to me.

Picture of fanica barsan
Re: Discussion on Module 2, "Hospital and Professional Medical Assistance"
by fanica barsan - Thursday, 16 May 2013, 11:42 AM

It was very interesting the presentation on this subject,and I think tht is very useful this approach.Congratulations for all of you and good luck.

Picture of Roma Sirvinskiene
Re: Discussion on Module 2, "Hospital and Professional Medical Assistance"
by Roma Sirvinskiene - Saturday, 25 May 2013, 7:01 PM

I think in every hospital aside of high specialized diagnostic and treatment services,education and scientific work,the prestige and reputation is gained together with various sophisticated methods of diagnostic,treatment and nursing.

Picture of Laimutis Vasilevicius
Re: Discussion on Module 2, "Hospital and Professional Medical Assistance"
by Laimutis Vasilevicius - Saturday, 25 May 2013, 7:34 PM

Continuing described  chapter 3 of the module,I remember my experience many years ago when I was a young health specialist .At this time I  did not decide which specialization is the best to my ability,brain functions and human body love.I have been practicing polliative care for terminal cancer patients at outpatient sections and at home care.I remember how difficult was to me to provide a sufficient   home care support for myself ,because I spent per half a day at the bed of one patient and had not enought time to visit them all.  I was depressed.Thanks my colleagues and patients relatives helped me to deal with this very painful experience.

Picture of Onute Vigeliene
Re: Discussion on Module 2, "Hospital and Professional Medical Assistance"
by Onute Vigeliene - Tuesday, 28 May 2013, 6:50 PM

We are much appreciated by the training and studies which are organized by LMSU,that we get group discussion about each Heppy module.We get all modules in short context in Lithuanian,so we can discuss and access practises and knowledge. 

Additionally too,I am very glad to meet my coleagues from the other towns and hwalth institutions.

Picture of Ruta Zeromskiene
Re: Discussion on Module 2, "Hospital and Professional Medical Assistance"
by Ruta Zeromskiene - Tuesday, 28 May 2013, 6:57 PM

Good day,

I am from Lithuania. I tried to answer the questionnaire.There are questions that seem simple, but not are correct.I mean that I do not know them rightly.But it is very interesting  to check your knowledge.

I need to make efforts,as I found a lack in  general of health care .... 

Picture of teofil brustureanu
Re: Discussion on Module 2, "Hospital and Professional Medical Assistance"
by teofil brustureanu - Thursday, 20 June 2013, 5:29 PM

for some technical reasons/the internet, i couldnt tell my opinion but i've read the courses from my colegues, and I think that this course its suitable for my needs, i work as a medical assistent at a foster house, and i belive that comunication its a promordial issue to discover afections, the elders have the need to talk and share there feelings


Picture of Bruna Giugno
Re: Discussion on Module 2, "Hospital and Professional Medical Assistance"
by Bruna Giugno - Friday, 21 June 2013, 10:11 AM

the best care is provided by relatives with their history and their experience. us health care alone would be a failure.

Bruna Giugno

Picture of laura colombo
Re: Discussion on Module 2, "Hospital and Professional Medical Assistance"
by laura colombo - Friday, 21 June 2013, 11:30 AM

I attended HeppyFad course-second module- with a lot of interest for the importance given to patients and their families.If you listen to people suffering from any kind of disease, it is easier to determine assistance time, procedure and target- I could learn.

Besides, the speakers showed us this useful experience is structured by means of ASL TO 4 report:nothing is left to chance.

I hope that Heppyfad meetings don't stop drawing health workers' attention to the stories told by the individual. He/She rejects every label just because of his/her valuable uniqueness.

Picture of giovanni marco vinardi
Re: Discussion on Module 2, "Hospital and Professional Medical Assistance"
by giovanni marco vinardi - Friday, 21 June 2013, 4:06 PM

Useful module. Valuable to me was the chapter on the ICF classification, that is a good tool to work, for example, in a residential centre for persons with disability. It's not a meticulous medical classification, but is easy to use by educators and others workers in social service. Maybe it will become a useful common language... if physicians will be agree.


Picture of sonia rita piana
Re: Discussion on Module 2, "Hospital and Professional Medical Assistance"
by sonia rita piana - Friday, 21 June 2013, 10:59 PM

I really believe in the importance of being in contact with parents and families, the problem today is all concentrated on money and time; too often people working in the sanitary system have to deal with these two problems and don't give so much attention to other things.

Picture of Elisa Bessone
Re: Discussion on Module 2, "Hospital and Professional Medical Assistance"
by Elisa Bessone - Sunday, 23 June 2013, 5:12 PM

narrative medicine is the new frontier, the new approach based on thinking together.

any professionist can improve their skills .... our work is not only a mission, but professionality, not only from the technical side, but also from the human and relational.

Picture of Franco Moretti
Re: Discussion on Module 2, "Hospital and Professional Medical Assistance"
by Franco Moretti - Sunday, 23 June 2013, 6:07 PM

Dear all,

I'm a psychologist in the Italian Health Service but I work in a prison with adult. I don't have experience with child, but I think, as Sabrina Grigolo, that now Heath Service tend  to reduce the health services, places and meeting points of “health promotion “ where families can meet. I've also less time to dedicate at any patient. In this condition is really difficult to listen to. I think it isn't only a money problem, it's a short sight problem: more time per patient is less spending on clinical and pharmaceutical treatments.

Picture of raffaella rebaudengo
Re: Discussion on Module 2, "Hospital and Professional Medical Assistance"
by raffaella rebaudengo - Tuesday, 25 June 2013, 9:50 AM

Healthcare is often a goal and not a base from which.
It's essential to place the patient at the center of the work.

Picture of Nadia Rocca
Re: Discussion on Module 2, "Hospital and Professional Medical Assistance"
by Nadia Rocca - Tuesday, 25 June 2013, 10:10 AM

The topic of the course is very interesting. Give ti families and staff an opportunity ti share their experience is important. In this moment is particularly hard find time during the work but we try every days.

Picture of alba marina albanese
Re: Discussion on Module 2, "Hospital and Professional Medical Assistance"
by alba marina albanese - Sunday, 7 July 2013, 7:06 PM

ICF is really important. It shows the awareness  of social scientists and  political actors about the links between health, participation in the community's life and social opportunities, but this could better people's life only if all involved people keep it as a rule and as  a working method. Thank's.

Picture of Maria Giovanna Campus
Re: Discussion on Module 2, "Hospital and Professional Medical Assistance"
by Maria Giovanna Campus - Saturday, 13 July 2013, 10:00 AM

I'm a psychotherapist and I liked very much the second part of the course because we talked about the importance of narration, of the pacient and of his history.

Picture of Federico Pixel
Re: Discussion on Module 2, "Hospital and Professional Medical Assistance"
by Federico Pixel - Thursday, 12 December 2013, 3:34 PM

Thank you all for taking part to the discussion,

I declare officially closed the forum on module 2 of the Heppy project.